Lipedema: Your Voice Is Powerful

Allow me to introduce myself – I’m Sylvie, and I’m Marketing Manager for the French market, but also one of the lipedema ambassadors for LIPOELASTIC. I joined the team almost two years ago and since then, I’ve had the opportunity to learn about lipedema and work on several projects.

When I say ‘opportunity’, I mean it because, before joining LIPOELASTIC, like many, I had never heard of the condition. Since then, I’ve done quite a bit of research to understand what lipedema is and how this condition affects those who are impacted. I must say, it’s a subject close to my heart, and I really enjoy researching and creating content with the aim of helping and providing information to those seeking advice or support (collaborations with lipedema heroes, blog posts with tips, our lipedema guide, etc.).

I discovered several support groups on Facebook, and I’ve also had the privilege of collaborating with individuals affected by lipedema. These individuals not only raise awareness of the condition but also share their everyday experiences on social media to help more people understand and recognise lipedema as a disease.

You may be wondering, why am I telling you all this?

Well, I wanted to address the importance of talking more about lipedema so that both those affected and those who aren’t can become aware of it and potentially get diagnosed.

It’s said that 1 in 11 women are affected by lipedema!

Talking more about it allows those suffering to seek help, but it’s also the best way to ensure that more professionals are educated about the condition and can assist those affected. Unfortunately, there are still far too few professionals properly trained in lipedema, leading to misdiagnosis and a great deal of frustration for those with the condition.

Your voice is POWERFUL!

Thanks to all your testimonials and your commitment to raising awareness of lipedema, I was diagnosed with stage 2 lipedema last year. Just a few months ago, a few months prior, I didn't even know that this condition even existed. I simply thought some of my pain was normal, that it was just my body shape, and that I was ‘different’. I imagine that many other women, like me, have been diagnosed thanks to your work and perseverance. So, THANK YOU!

My diagnosis was quick, again, thanks to you, the lipedema heroes who share your advice and experiences in Facebook support groups, on Instagram or TikTok.

From reading your comments, I know that getting a diagnosis and finding the right professional can be difficult, but thanks to your guidance, I was able to meet the right person—someone kind and specialised near me.

Talk about it, always more, and seek support!

Since my diagnosis, I’ve been talking more about it to those around me because I know there are so many women who are affected and don't even realise it. Educating others is also about raising awareness to foster more understanding and compassion.

Life isn’t easy for those with the condition, and being able to talk about it without guilt or shame with those around us has a truly positive impact on our mental health.

Don’t hesitate to seek support. I can speak from personal experience, and I know how much lipedema can affect us mentally and emotionally. So, please, don’t hesitate to seek support.

Together, we are stronger, and our voice is powerful! Let’s continue supporting and advising each other, raising awareness of lipedema, and pushing for progress in the recognition of the condition, better treatment, and improved care for you, for us, the lipedema heroes.

You can join our Lipedema Heroes Facebook group and Instagram page where I will be sharing tips, insights and my personal experiences.